This should be shorter than the original post on this topic…
The CDE said what I expected: You are the parents, you make these health decisions. Best thing is to be consistent & clear about what is non-negotiable. (paraphrase)
Of course, I know that. I think what I was really looking for was how to approach the emotions. But I also know that our (great) CDE’s job/strength is to manage the diabetes – the physical parts of it, the numbers. The social worker is who I need to talk to for the psychosocial pieces.
The CDE did give me the e-mail of another mom with two T1 kids who both wear Dexcoms so that’s another person I can reach out to. Hopefully she doesn’t just say that she has never had her kids resist this hard to the sensor.
The good news? The Bear agreed that we could insert a new sensor tonight and though she was tense, she went right along when it was time to do it.
The bad news? Before the 2-hour calibration window was up the sensor failed. I tried restarting it, but same error message. Called Dexcom & through the conversation realized that I had used an expired sensor. Dexcom couldn’t say for sure that was what caused the failure, but it does mean they can’t replace it. No big deal there but now I feel awful. A chance to have a positive experience (or at least less negative) and now I have to tell her in the morning that we need to take it off. It’s unlikely she will agree to put on a new one in the morning without her dad here (it usually takes the two of us – one to hold/comfort & the other one to insert) so it will need to wait until tomorrow evening. I usually cut myself at least some slack with these kinds of mistakes – they happen often enough with diabetes that you have to let some of them go – but this one I should have paid more attention to.
This too shall pass… but for now I still have the CGM blues – mainly over the distance between managing the numbers and managing the broken heart.
Follow-Up: The Bear cooperated to try a new sensor tonight — this one also failed after only about 25 minutes. The support people are always so nice… They are sending a replacement sensor for this failed one. I did explain my concern that here is a kid who is already reluctant to wear the sensor and I’m going to have to insert the 3rd one in as many days with no way to know if that one will fail as well. Could there possibly be another problem, I asked – could it be the transmitter or receiver? Almost always a sensor issue according to support. And it would be very rare to have a whole lot that was defective. Still, I went through the sensors we have left and chose one with a different lot number – only 2 numbers different, but still. Feeling discouraged.